Development of a clinical decision support system for caregivers of children with hemophilia

Authors

  • Gabriela Gräwer Bauermann UFCSPA
  • André Santaló Oliveira UFRGS
  • Eliane Dallegrave UFCSPA
  • Cecília Dias Flores UFCSPA

DOI:

https://doi.org/10.59681/2175-4411.v16.iEspecial.2024.1291

Keywords:

Hemophilia A, Clinical, Decision Support Systems, Caregivers, Decision Support Systems, Clinical

Abstract

Hemophilia is diagnosed in the first years of the patients' lives. Therefore, it is essential that their caregivers are trained on how to manage the disease. Given that, information technologies help in expanding access to information and improving healthcare services. Objective: Develop an application with a Clinical Decision Support System to assist these caregivers. Method: The development of the application took place in three stages, including the modeling of specialist knowledge and the interface of the system. Results: this work demonstrated the potential of using Bayesian Networks in the development of a Clinical Decision Support System to assist caregivers of pediatric hemophiliac patients. Conclusion: This study corroborates the benefits and need for an application that offers useful, easily accessible and understandable information for caregivers of children with hemophilia.

Author Biographies

Gabriela Gräwer Bauermann, UFCSPA

Mestrado em Tecnologia da Informação e Gestão em Saúde, PPG Tecnologia da Informação e Gestão em Saúde, Universidade Federal de Ciências da Saúde de Porto Alegre (UFCSPA), Porto Alegre (RS), Brasil.

André Santaló Oliveira, UFRGS

Bacharelado em Computação, Instituto de Informática, Universidade Federal do Rio Grande do Sul (UFRGS), Porto Alegre (RS), Brasil.

Eliane Dallegrave, UFCSPA

Doutorado em Ciências Veterinárias, PPG Farmacologia, Universidade Federal de Ciências da Saúde de Porto Alegre (UFCSPA), Porto Alegre (RS), Brasil.

Cecília Dias Flores, UFCSPA

Doutorado em Computação, PPG Ensino na Saúde, Universidade Federal de Ciências da Saúde de Porto Alegre (UFCSPA), Porto Alegre (RS), Brasil.

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Published

2024-11-19

How to Cite

Bauermann, G. G., Oliveira, A. S., Dallegrave, E., & Flores, C. D. (2024). Development of a clinical decision support system for caregivers of children with hemophilia. Journal of Health Informatics, 16(Especial). https://doi.org/10.59681/2175-4411.v16.iEspecial.2024.1291

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